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Welcome to the Web site for CFS Caregivers! If you have any comments or suggestions, please email Richard Senior at richardsenior@onetel.net.uk.

Sometimes people wonder why they should be interested in a caregiver's group. They say, "It's not like my friend or partner has AIDS or anything."

Here's our answer to that question:

Well, yes and no. CFS isn't fatal (unless your partner becomes profoundly depressed), but it can devastate lives all the same. Some doctors have said the daily pain of CFS is like the pain AIDS patients face in the last two months of their lives. Living with someone in that kind of discomfort takes a lot out of a caregiver.

Please read our FAQ for more information about why you might need to be here.

CFS-CARE is an Internet discussion group for caregivers of people with chronic fatigue syndrome, fibromyalgia, and other chronic illnesses. Topics include emotional support, communication, research, diagnosis and treatment, related illnesses, support mechanisms, community, and humor.

The discussion is conducted by electronic mail, so all you need is an Internet account with e-mail privileges. The discussion is unmoderated, the atmosphere is supportive, and no topic is off limits or "incorrect." There's no charge to participate, and you can join or drop the list at any time. (Note: In order to encourage free expression on sensitive topics, the discussion is currently limited to caregivers.)

For more information, or to join, write to Richard Senior at richardsenior@onetel.net.uk.

Listening to CFIDS - a must-see site. Contains writing and art by PWCs and their caregivers, and information on CFS/CFIDS. Excellent resource for both sufferers and their family and friends, to get across how devastating the disease is.

"Caregivers Need Support Too!"

• Caregiver Survival Resources

  Family Caregiver Alliance

  National Family Caregivers Association

  CFIDS: Pieces to the Puzzle

This CFS Ring site is owned by Sue Boettcher. Want to join the CFS Ring?
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